It took seeing an eye doctor to get the correct diagnosis.
But that was short-lived. My symptoms didn’t fully add up, and my doctor soon realized I didn’t have Bell’s palsy. Looking back, we know the paralysis was probably from an, but at the time we had no idea. My doctor actually thought I had a virus that had entered through my ear during a recent trip to SeaWorld. It had been a windy day, so he was like, “Oh, that must have been it, the virus went in through your ear with the wind.
It was a scary time because, while I believed what my doctors were saying, it seemed weird that there were so many different symptoms that couldn’t be explained. I started to feel like something was really wrong with me. I was going to the E.R. frequently. I even told my boyfriend that I didn’t want to think about marriage until I figured out my health.
Around that time, I started to see gray spots in my vision, but at first I just thought I left my contacts in for too long. The spots were sort of like floaters, and I assumed they weren’t a big deal. I was around 25 or 26 at the time, so I really didn’t expect anything more than that. I went to my regular optometrist, and he referred me to an ophthalmologist. I went in for a vision test, and immediately afterward he said, “I think you have M.S.
My primary care doctor then referred me to a neurologist. While the doctor strongly suspected I had M.S., getting a diagnosis took a very long time, mainly because there isn’t a single test they can use to make the diagnosis. Instead, it’s a series of tests and involves ruling out other illnesses. I had an MRI, a spinal tap, a pregnancy test, and many other exams. It was a lot of appointments and a lot of waiting. I finally got diagnosed with M.S. in April of 1997.
When I got the diagnosis, it was such a relief, and I was so thankful. Everyone thought it was a bit strange that I was thankful, but I was so happy because, now that I had a diagnosis, there were medications I could take and things I could do to manage my condition. Previously it was all very scary, and I had no idea what was going to happen. With the diagnosis I could finally research the condition, get information from my doctor, and actually do something about it.
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