As SelmaBlair’s acting career flourished in the 2000s, what fans didn’t see was that the actor was masking her symptoms on-screen and self-medicating through the pain.
When it comes to her advocacy work, Blair is taking a less relaxed approach. Bursting with ideas for new projects, for the actor-turned-advocate the trauma of being labelled “healthy” for decades has the upshot of giving her a “unique perspective”. She describes herself to me as having “lived in two worlds” – the non-Disabled world and now Disabled – a reality that helps her not only work with Disabled allies but bring in non-Disabled people who may not be familiar with the issues.
Blair is keenly aware her profile means there is value in her simply being visible as a Disabled woman. “I didn’t imagine I could ever make a difference by showing up as myself and being open about my experiences. But when others with mobility aids rallied around my presence on the red carpet with a cane and in the midst of an MS flare, I noticed. I felt empowered to share… Now it’s a conscious choice to.
It would be easy to take for granted Blair’s decision to speak out about her MS, but it has not come without a cost. “Groups of friends and love interests lost interest,” she admits, though others have remained steadfast. Her own doctor urged her to keep her diagnosis a secret. “The advice was to keep it to myself,” she says, “that work ‘wouldn’t have to know’. People didn’t feel safe sharing that stuff.” At times, she feared she wouldn’t work as an actor again.
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