Three people share their experiences
Three people who have had monkeypox spoke with TIME about their experience. They described it as both a physically and mentally difficult disease, one that caused stigma, confusion, and pain. “It was terrifying,” said Matthew Cancel, a publicist in New York City. “I really was in it alone.” Each shared their story in hopes of helping others.
Meantime, all of my friends and I were saying, “Hey guys, I know the vaccine is super scarce, but one thing we can all be doing is twice daily skin scans. It’s free and you can do it at home, and the worst thing that’s going to happen is that you’re going to find a mole that you should have a doctor look at.” So on July 10—just 26 hours after my vaccine—I did a skin scan and noticed my first lesion. By the next morning, I was in my doctor’s office and had them sample the lesion.
Note: TPOXX is considered an investigational new drug, which requires multiple forms, patient samples, and even photos of lesions before it could be prescribed. As of July 22, the U.S. Centers for Disease Control and Prevention Finally, just as a shot in the dark, I posted a story to Instagram with a desperate plea asking if anyone knew how to get access to TPOXX.
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