The vital role of patients and the general public in guiding long-COVID research Research Coronavirus Disease COVID LongCOVID NatureMedicine uniofleicester unibirmingham ucl LSHTM
By Neha MathurMar 27 2023Reviewed by Aimee Molineux In a recent correspondence article published in the journal Nature Medicine, researchers in the United Kingdom emphasized the significance of public and patient involvement in scientific studies on long coronavirus disease .
Apart from devising ways to collaborate across studies, the bigger goal of establishing this group was understanding the epidemiology of long COVID. For example, patients experience persistent symptoms after recovering from acute severe acute respiratory syndrome coronavirus 2 infection. The success story of PPI The therapies for long COVID in non-hospitalized individuals is a study that remarkably depicted the success of PPI. The patient partners of this study identified the need to develop the Symptom Burden Questionnaire for Long COVID , which has received a license >90 times across 50 nations. Notably, long COVID patients actively participated in the content generation for the SBQ-LC.
As an exception, the CONVALESCENCE long COVID study recruited most participants from differing communities and contained questions on diversity and equality in its PPI recruitment materials. The PPI team also provided extensive training to all participants so that they felt qualified to contribute to scientific studies, even in advanced domains, e.g., quantitative data interpretation.
Learnings from studies with PPI The most important learning is that patient advisory groups must be established, with clear pathways for new joiners, and ensure their sustainable contribution. Sourcing people from several PPI networks rather than one could help ensure diverse participation. In addition, all PPI members should be asked to contribute to studies based on their skill sets and interests. Furthermore, PPI meetings should be flexible. For example, in duration, considering individual needs, and disabilities, if any. Different research studies might have varying PPI requirements; for instance, some studies are more cognitively challenging.
Österreich Neuesten Nachrichten, Österreich Schlagzeilen
Similar News:Sie können auch ähnliche Nachrichten wie diese lesen, die wir aus anderen Nachrichtenquellen gesammelt haben.
Pet dogs a threat to nesting birds in South Walney - warningCumbria Wildlife Trust says there have been 'alarming' incidents at South Walney Nature Reserve.
Weiterlesen »
Wild Isles: Daneway Banks' butterflies star in Attenborough seriesNature reserve renowned for its large blues features in the latest episode of Wild Isles.
Weiterlesen »
Google's claims of super-human AI chip layout in disputeNature probes published research as it emerges journal paper allegedly used to entice $120m cloud deal
Weiterlesen »
Deborah Meaden: 'Our rivers are disgraceful. Destroying nature should be a crime'Water companies that knowingly discharge sewage into Britain’s waterways should face tougher criminal sanctions as the state of our rivers has reached a “critical” point, according to Dragons’ Den star DeborahMeaden 💧 SaveBritainsRivers
Weiterlesen »
Here's a game about being the spirit of nature after we've killed all the animalsIt's a bit less grim than it sounds, I promise.
Weiterlesen »
2023’s Best New Serums, According To An ExpertWhy the pros consider serums “medicine” for your skin and vitamin C “the LBD of skincare.”
Weiterlesen »