Teen siblings with a rare genetic disorder each receive a kidney on the same day from the same donor.
In a unique occurrence, a brother and sister who were born with the same rare condition have both received kidneys on the same day and from the exact same donor.
When John Ben was born in 2000, the Shepperds were shocked to learn a year later that he had cystinosis. Over the years, John Ben's and Ava’s health began to decline. Their kidneys began failing and each teen underwent dialysis. Both John Ben and Ava were added to the donor wait list, though John Ben's wait was almost two years.
"Obviously if a person gives both kidneys they're deceased," John Shepperd said."The mom and dad, maybe both, had to make that decision together that their child was not going to make it but they were going to donate his or her organs. I would show [the donor's family] John Ben and Ava and say look, 'There is great good that came out of this.'"Dr.
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