The exhibition launches in Leeds today
Rugby league star Rob Burrow, 40, was diagnosed with motor neurone disease in December 2019 and can no longer walk or talk, communicating through a keyboard controlled by his eyes.Advertisement“The ‘7 Stories of MND’ photography exhibition helps to showcase the enormous and devastating impact of MND. More needs to be done to help people with MND, in terms of research and holistic support.
He says: “It’s thanks to the critical help, compassion, expertise and kindness provided by the specialist MND team in Leeds, that my family and I have maintained our sense of fun, and our wonderful ability to laugh with each other. Whilst my mobility, dexterity and respiratory functions are failing, my sense of adventure remains intact.”Dr John Hamlin, 53, is a consultant gastroenterologist at Leeds Teaching Hospitals.
“It needs to be highlighted just how cruel MND is. The disease slowly paralyses previously fit, healthy people and dramatically cuts short their lives…It is a significant disease, with a significant impact, not just on the patient but on the family and friends around them.”Jude de Vos’s son Jody died of MND in 2017, when he was aged 38. Since then, Jude has climbed Ben Nevis to raise funds for the Rob Burrow Centre for MND appeal.
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