Unlike many other long-term health conditions, most people with Alzheimer's disease and related dementia (ADRD) receive some or all of their care from an unpaid relative or friend—a situation that has spawned robust scientific literature on the potentially negative health implications of caring for a friend or family member over a sustained period of time.
and quality; neighborhood and built environment; and social and community context.
Improve identification of ADRD caregivers. Gaps in data are a major challenge in understanding the public health challenges of ADRD caregiving. Using surveys, information could be gathered to help support initiatives targeted to specific challenges of ADRD caregivers. Advance health care policies that support caregivers. Caregivers have important roles in our health care system, yet their roles are not articulated effectively within the policies of health care delivery systems. More effective public policies could formally identify the role and status of caregivers in the health care system. A payment system that recognizes and incentivizes the work of ADRD caregivers is also recommended.
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