Why a powerful House Republican wants to ban a common insurance practice.
She is right. While QALY plays a significant role in health-care decisions in the United States, it puts people with disabilities like Down syndrome, ALS and cystic fibrosis at a medical and economic disadvantage.
Although QALY is a relatively new measurement, the recalculation of the age of people with disabilities has been a common practice in medicine and psychology dating back to the 19th century. Those classified as “feebleminded” or “backward” were often described as halted in an early stage of childhood. Physicians working in state institutions and asylums referred to their patients of whatever age as happy, naive children.
Goddard claimed that the calculation of mental age was scientifically legitimate, yet the desire to devalue the lives of those with disabilities remained. “The conclusion is forced upon us that it is very unfair to the normal child to keep these children in the same class with him,” he wrote in 1911. Goddard argued that those who performed poorly on an IQ test were not worth the financial investment and efforts of public education.
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