DIPG is a rare form of pediatric brain cancer with no known treatment. Families are hopeful that tissue donations will lead to a possible cure.
"He was very rambunctious, he was very kind a bit of an old soul," said Owen's mother, Amanda Shaker.
After a trip to Lurie Children's Hospital, Owen was diagnosed with a rare form of pediatric brain cancer called DIPG. The survival rate is 0%. Owen died 5 and half months after being diagnosed. His parents donated his brain tissue for research. "We have a lot of different kinds of brain tumors where long-term survival is less than 20%, some are zero percent," said Dr. Angela Waander, with Lurie Children's Hospital.
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