Autism rates in girls have steadily risen in recent years. But as more women are diagnosed in adulthood, some wonder how many girls are still missed.
Morenike Giwa Onaiwu, whose daughter, Legacy, was diagnosed with autism in 2011 just before she turned 3, in Houston, April 6, 2023.
More adult women like Onaiwu are being diagnosed as well, raising questions about how many young girls continue to be missed or misdiagnosed. Most girls diagnosed with autism in those early days had intellectual disabilities, making it easier to identify them, Lord said. Kevin Pelphrey, a neuroscientist and autism researcher at the University of Virginia Brain Institute, said that more than 15 years ago, when his own daughter began to show signs of autism, even he didn’t recognize them. Pediatricians told him, “‘It’s probably not autism — she’s a girl,’” he recalled.
She wasn’t diagnosed with autism until she was 40, six years after her son was diagnosed. She was initially taken aback by the diagnosis, she said, partly because her son’s struggles — including language delays and fixations on certain activities and movies — were so different from hers.
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