Reasons included a lack of informed consent or ethics approval to share; misplaced data; and that others had moved on from the project.
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The team identified 381 articles with links to data stored in online repositories and another 1,792 papers for which the authors indicated in statements that their data sets would be available on reasonable request. The remaining studies stated that their data were in the published manuscript and its supplements, or generated no data, so sharing did not apply.
“It’s quite dismaying that [researchers] are not coming forward with the data,” says Rebecca Li, who is executive director of non-profit global data-sharing platform Vivli and is based in Cambridge, Massachusetts.
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