Living with Lupus can be hard. But, good care and self-care can help people manage chronic illnesses. For Marisa, instead of running herself into the ground, she’s learned to listen to her body.
Serious racial disparities related to lupus can strongly affect a woman’s chance of surviving the disease. A 2019found Black women with lupus were 3.34 times more likely to die than Black women in the general population, while white women with lupus were 2.43 times more likely to die than white women in the general population.
Maese feels it’s important that people with lupus are able to trust their providers. If you don’t feel like your HCP listens to your concerns, she said, don’t be afraid to find someone who will. Buyon agrees that finding the right doctor is particularly important for people with lupus. “I think that lupus requires a very special patient-doctor relationship, I really do,” she said.
designed to suppress inflammation and prevent the immune system from causing damage. Buyon said these medications are improving — getting better and more effective — on a yearly basis.for managing her chronic illness. “I make every effort to take care of my body to the best of my ability,” she said. Although Maese used to be someone who would run herself into the ground, she has learned to listen to her body.
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