Here's how I've learned to accept my new normal.
Because Carlee had dealt with migraine for years before she had her first hemiplegic episode, she thankfully got the proper diagnosis right away, but that didn’t make the experience any easier—especially as the hemiplegic migraine attacks became more frequent. The attacks have caused issues in her workplace, tension among close friends and family who have well-intentioned but misinformed treatment suggestions, and a complete restructuring of her life around these debilitating attacks.
At the E.R. the doctor and nurses were initially concerned that I was having a transient ischemic attack , which is a temporary stroke that presents in younger patients more frequently than other types of stroke. I was finally able to scratch out ‘migraine’ on a piece of paper for the nurse, but she told me they would do a CT scan and an MRI regardless.
Migraine attacks are incredibly painful and scary, but hemiplegic attacks are next-level terrifying. I lose the ability to communicate and sometimes my memory skips, and I forget exactly what happened. When the attack starts, I have no way of knowing if it will be a normal migraine, a status migraine , or hemiplegic. Not knowing has really affected my ability to work.
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