This must be so hard 😥
The mum of a terminally ill child says her family has been "inundated" with kindness since taking her son home to live out his final days.
Catriona continued: "He started to gain weight. He was a child that always struggled to gain weight and the paediatricians in the Royal struggled to understand why he was gaining weight. "Great Ormond Street gave him the official diagnosis of ROHHAD - he's the only person on the island of Ireland to have this diagnosis. He's the third in the world to have ROHHAD with encephalopathy.
"I can't explain the love and the care my three children have had for Caoimhin over his eight years of life," Catriona said. "It's heartwarming. "We got him home on the Friday, two weeks ago, and his care has become 24 hours, round the clock. We're doing it ourselves. I am his Mummy and I'm here to make sure he's okay. I want to be able to say I've done everything for him."
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