Even the best treatment approaches for Parkinson's disease are inadequate if they do not address patients' feelings of social rejection, isolation, loneliness and other psychosocial effects of stigma, according to a report from experts specializing in Parkinson's and other movement disorders.
Subramanian and colleagues say stigma is known to negatively impact quality of life for patients with Parkinson's, but there has been little research devoted to the subject. The new article reviews findings from previous studies on stigma,
, stress, shame and other related factors before focusing on how doctors, medical teams, patients and supporters can work together to manage the effects of stigma.need to develop a tool to routinely assess stigma and identify its effects on patients."And if not physician-initiated, patients must feel empowered enough to bring these issues to the attention of their medical team," the authors said.
Formal interventions using therapies that identify and address the numerous factors that can result from stigma. "Parkinson's disease results in an illness burden that includes both visible and invisible symptoms. The resulting stigma can lead to social anxiety and isolation, reluctance to seek medical care, loneliness, depression and anxiety," the authors write."Having a better understanding of the role of stigma and its impact may allow clinicians to provide proactive care and greater empathy for those living with the challenges of this disease.
Subramanian is senior author. Bradley McDaniels, Ph.D., of the University of North Texas, is first and corresponding author. Other authors include Dr. Gregory Pontone, of Johns Hopkins School of Medicine, and Dr. Soania Mathur, of Unshakable MD in Toronto, Canada.Parkinsonism & Related Disorders
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